Results 1 to 40 of 40
Like Tree3Likes
  • 1 Post By lovbyts
  • 1 Post By GirlyGymRat
  • 1 Post By GirlyGymRat

Thread: Fibromyalgia Question

  1. #1
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Hello everyone, I've talked to Lovbyts some about fibromyalgia pain and wanted to bring up the topic for everyone to maybe gives some ideas/answers. Currently I'm taking Vitamin D3 - 5,000 iu a day, 1000 mg of Magnesium a day, Fish Oil, a multivitamin and also a digestive enzyme. I believe my fibromyalgia started within my stomach and than just eventually spread to my whole body. Around October of 2014 I started having terrible stomach pain, I had an EGD and a colonoscopy done with nothing found but a little bit of GERD symptoms. Than in January of 2015 is when the pain of what I felt in my stomach just went to my whole body. I've had several tests done and after all tests the doctors came up with it being fibromyalgia. My diet is what I've changed the most which I've cut out sugar, dairy, gluten and anything else I'm sensitive to. I was wondering if anybody knew of anything that might help with fibromyalgia? I've read HGH studies have been done and did help some, but I don't think my doctor(s) would be on board with that.
    Last edited by wolves42; 02-02-2016 at 07:17 AM.

  2. #2
    Bonaparte's Avatar
    Bonaparte is offline AR-Hall of Famer
    Join Date
    Aug 2009
    Posts
    13,504
    Pregabalin and antidepressants, along with regular exercise.

  3. #3
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by Bonaparte
    Pregabalin and antidepressants.
    Do you also have fibromyalgia man?

  4. #4
    Juced_porkchop's Avatar
    Juced_porkchop is offline Knowledgeable Member
    Join Date
    Jul 2012
    Location
    Canada
    Posts
    2,643
    Cannabis .
    I know a few it helps with this issue. I rec high CBD strain to avoid mental effects, its what i prefer anyways.
    I am a big advocate of this and done just as much research on it as aas (and thats a fair bit IMO)
    maybe you will find some helpful info here> google "granny storm crows list 2015" its got alot of med ref in there and research for many conditions. blows my mind how much this plant can do and the recent ACTUAL research, even protecting braincells and Alzheimer research for eg... wish it didnt even have thc/ mental buzz so the people would STFU about its stereotypes.

  5. #5
    Bonaparte's Avatar
    Bonaparte is offline AR-Hall of Famer
    Join Date
    Aug 2009
    Posts
    13,504
    Quote Originally Posted by wolves42 View Post
    Do you also have fibromyalgia man?
    No. But fibromyalgia is usually linked to depression, inactivity, and poor diet/lifestyle. Pregabalin (Lyrica) is the best drug for actual nerve pain.

  6. #6
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by Juced_porkchop
    Cannabis . I know a few it helps with this issue. I rec high CBD strain to avoid mental effects, its what i prefer anyways. I am a big advocate of this and done just as much research on it as aas (and thats a fair bit IMO) maybe you will find some helpful info here> google "granny storm crows list 2015" its got alot of med ref in there and research for many conditions. blows my mind how much this plant can do and the recent ACTUAL research, even protecting braincells and Alzheimer research for eg... wish it didnt even have thc/ mental buzz so the people would STFU about its stereotypes.
    Sweet, I will check CBD out since I'm in Colorado and can get access to a lot of that! I did try a high thc strain but it made me feel like I was losing my mind and hearing voices, weird stuff like that lol.

  7. #7
    lovbyts's Avatar
    lovbyts is offline Knowledgeable Member
    Join Date
    Apr 2008
    Posts
    29,450
    Quote Originally Posted by wolves42 View Post
    Hello everyone, I've talked to Lovbytes some about fibromyalgia pain and wanted to bring up the topic for everyone to maybe gives some ideas/answers. Currently I'm taking Vitamin D3 - 5,000 iu a day, 1000 mg of Magnesium a day, Fish Oil, a multivitamin and also a digestive enzyme. I believe my fibromyalgia started within my stomach and than just eventually spread to my whole body. Around October of 2014 I started having terrible stomach pain, I had an EGD and a colonoscopy done with nothing found but a little bit of GERD symptoms. Than in January of 2015 is when the pain of what I felt in my stomach just went to my whole body. I've had several tests done and after all tests the doctors came up with it being fibromyalgia. My diet is what I've changed the most which I've cut out sugar, dairy, gluten and anything else I'm sensitive to. I was wondering if anybody knew of anything that might help with fibromyalgia? I've read HGH studies have been done and did help some, but I don't think my doctor(s) would be on board with that.
    HEY, there is no e in lovbyts. lol

    Pregabalin is Lyrica, right? Oh, I see further down you said yes it is.

    Ive used it and it worked for only a couple of weeks. I though it was great at first but quickly seemed to stop. I have a couple friends that had the same results. I think it may help with some of the nerve pain for the feet. I just started using it yesterday again (my stockpile) to see if it will help with the foot nerve pain again because Ive been noticing it's getting worse again and nothing seems to help.
    Last edited by lovbyts; 02-02-2016 at 04:26 AM.

  8. #8
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by lovbyts
    HEY, there is no e in lovbyts. lol Pregabalin is Lyrica, right? Oh, I see further down you said yes it is. Ive used it and it worked for only a couple of weeks. I though it was great at first but quickly seemed to stop. I have a couple friends that had the same results. I think it may help with some of the nerve pain for the feet. I just started using it yesterday again (my stockpile) to see if it will help with the foot nerve pain again because Ive been noticing it's getting worse again and nothing seems to help.
    Haha, sorry I edited your name on my original post! What's your diet like bro?

  9. #9
    lovbyts's Avatar
    lovbyts is offline Knowledgeable Member
    Join Date
    Apr 2008
    Posts
    29,450
    Quote Originally Posted by wolves42 View Post
    Haha, sorry I edited your name on my original post! What's your diet like bro?
    My diet is like KelKels Cardio. Non existent right now. I don't eat a lot of trash or sugar though but I'm sure it could be cleaner. I'm just not that disciplined. I was hoping the wife would help me get on track with that but it was a very poor plan on my part.

    You should still try the lyrica. Everyone is different and maybe it will help. I know if I have not taken it for a while it sure helps me sleep better like last night. I actually got close to 8 hrs.

  10. #10
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Oh good bro! I was looking into a latex type mattress for sleep. I've read that is what a lot of people that have fibromyalgia use.

  11. #11
    lovbyts's Avatar
    lovbyts is offline Knowledgeable Member
    Join Date
    Apr 2008
    Posts
    29,450
    Quote Originally Posted by wolves42 View Post
    Oh good bro! I was looking into a latex type mattress for sleep. I've read that is what a lot of people that have fibromyalgia use.
    Make sure it's firm. One thing made mine 10x worse was a memory foam mattress. I've tried several times and each time after a week it got worse. Firm is much better. Lack of movement like on memory for a soft mattress makes all the joints hurt more.
    almostgone likes this.

  12. #12
    bigdil511 is offline Associate Member
    Join Date
    May 2015
    Posts
    399
    Quote Originally Posted by Bonaparte
    No. But fibromyalgia is usually linked to depression, inactivity, and poor diet/lifestyle. Pregabalin (Lyrica) is the best drug for actual nerve pain.
    All lyrica did for me was give me extremely nasty nightmares, went through withdrawal after only taking for 1 week, and did nothing for my neuropathy.

  13. #13
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by bigdil511
    All lyrica did for me was give me extremely nasty nightmares, went through withdrawal after only taking for 1 week, and did nothing for my neuropathy.
    So you have fibromyalgia as well?

  14. #14
    Bonaparte's Avatar
    Bonaparte is offline AR-Hall of Famer
    Join Date
    Aug 2009
    Posts
    13,504
    Quote Originally Posted by bigdil511 View Post
    All lyrica did for me was give me extremely nasty nightmares, went through withdrawal after only taking for 1 week, and did nothing for my neuropathy.
    Gabapentin would be a safer alternative.

  15. #15
    Learn1st's Avatar
    Learn1st is offline Female Member
    Join Date
    Feb 2016
    Location
    NY
    Posts
    30
    Look into B6 hyaluronic acid and niacin(real niacin not the flush free crap) to help support healthy nerves. Also look into TMG a diatery supliment that facilitates the production of SAMe in the brain,(among other things)which in turn increases your serotonin production.

  16. #16
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by Learn1st
    Look into B6 hyaluronic acid and niacin(real niacin not the flush free crap) to help support healthy nerves. Also look into TMG a diatery supliment that facilitates the production of SAMe in the brain,(among other things)which in turn increases your serotonin production.
    Would I be able to find the real niacin on Amazon?

  17. #17
    Learn1st's Avatar
    Learn1st is offline Female Member
    Join Date
    Feb 2016
    Location
    NY
    Posts
    30
    Quote Originally Posted by wolves42 View Post
    Would I be able to find the real niacin on Amazon?
    Yes just make sure it dosnt say niacin(inositol hexanicotinate) in its ingredients and just says niacin only. It will be more expensive but the flush will promote blood flow to all the tiny nerve endings in your skin. Start slow with it, the flush can be unnerving if you aren't used to it. Start at night so you can sleep through it then after a week or so do one dose in the morning and one at night. Your body will get used to the flush after a while. I take 500mg in the am 500mg at lunch 500mg at dinner and 1000mg at night. It took a while to aclimate up to this dose but it has helped me tremendously with nerve pain and has also dropped my cholesterol a few points.

  18. #18
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by Learn1st
    Yes just make sure it dosnt say niacin(inositol hexanicotinate) in its ingredients and just says niacin only. It will be more expensive but the flush will promote blood flow to all the tiny nerve endings in your skin. Start slow with it, the flush can be unnerving if you aren't used to it. Start at night so you can sleep through it then after a week or so do one dose in the morning and one at night. Your body will get used to the flush after a while. I take 500mg in the am 500mg at lunch 500mg at dinner and 1000mg at night. It took a while to aclimate up to this dose but it has helped me tremendously with nerve pain and has also dropped my cholesterol a few points.
    Cool! Thanks for the info!

  19. #19
    lovbyts's Avatar
    lovbyts is offline Knowledgeable Member
    Join Date
    Apr 2008
    Posts
    29,450
    Quote Originally Posted by Bonaparte View Post

    Gabapentin would be a safer alternative.
    We've talked about Gabapentin, we've both used it. Same results as lyrica. Works for a short time. I still use it off and on also.

    Interesting g about the niacin. I'll look into that also. I'm not sure what type I have but I k ow it's jot 100% flush free because I have to break them in half and split up over several hours or my ears and head are burning g. LoL

  20. #20
    bigdil511 is offline Associate Member
    Join Date
    May 2015
    Posts
    399
    Quote Originally Posted by Bonaparte
    Gabapentin would be a safer alternative.
    Yes but no real benefit.

  21. #21
    bigdil511 is offline Associate Member
    Join Date
    May 2015
    Posts
    399
    Quote Originally Posted by wolves42
    So you have fibromyalgia as well?
    No, neuropathy due to guillain barre syndrome than CIDP.

  22. #22
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by bigdil511
    No, neuropathy due to guillain barre syndrome than CIDP.
    Ahh, I've never heard of either of those. I just have fibromyalgia and than I have dizziness like everyday, but not vertigo, just like I'm drunk and off balance all the time. I'm trying to do vestibular therapy for it, but it's not working yet! It's all a pain for 26 yrs old!

  23. #23
    Learn1st's Avatar
    Learn1st is offline Female Member
    Join Date
    Feb 2016
    Location
    NY
    Posts
    30
    Quote Originally Posted by wolves42 View Post
    Ahh, I've never heard of either of those. I just have fibromyalgia and than I have dizziness like everyday, but not vertigo, just like I'm drunk and off balance all the time. I'm trying to do vestibular therapy for it, but it's not working yet! It's all a pain for 26 yrs old!
    The bolded worries me, especially since you are suplimenting with magnesium. Magnesium causes your body to purge water and an imbalance can cause dizziness from low blood volume. Are you taking it under a dr supervision? If so have you told them about the dizziness? please if you haven't brought this up to your dr do so immediately! This can be serous and should not be shrugged off.

  24. #24
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Well my chiropractor put me on the magnesium, and yes my rheumatologist and neurologist have both seen my supplement list and never questioned it before. The dizziness occurred before I started supplementing with magnesium, I may quit it for a while to see if that helps any. What I've found helps the most is 5 HTP for some reason with my dizziness? Not sure exactly why. Yes, both doctors know I have the dizziness. My neurologist had me do a brain and neck MRI for it along with seeing a Ear, Nose and Throat specialist lol.

  25. #25
    Learn1st's Avatar
    Learn1st is offline Female Member
    Join Date
    Feb 2016
    Location
    NY
    Posts
    30
    Does it happen more 30ish seconds after you sit up or stand up? If so, try clenching the muscles in lower body before you move to help keep the blood in your head as you change position. I would also have them test your blood pressure as you are squatting on the ground for 60 sec and then as you stand and 30 seconds after. If it is low blood volume there will be a sharp drop in bp after you stand.

  26. #26
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Quote Originally Posted by Learn1st
    Does it happen more 30ish seconds after you sit up or stand up? If so, try clenching the muscles in lower body before you move to help keep the blood in your head as you change position. I would also have them test your blood pressure as you are squatting on the ground for 60 sec and then as you stand and 30 seconds after. If it is low blood volume there will be a sharp drop in bp after you stand.
    We've checked that, and it didn't make any difference. The only time I don't feel a dizzy sensation is when I'm laying down, than I never feel it at all!

  27. #27
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    What would be the best thing to take for muscle cramps? My legs like to cramp up a lot especially after physical type work?

  28. #28
    GirlyGymRat's Avatar
    GirlyGymRat is online now Knowledgeable ~ Respected Female Leader ~
    Join Date
    Oct 2010
    Location
    In a gym!
    Posts
    14,644
    potassium

    Quote Originally Posted by wolves42 View Post
    What would be the best thing to take for muscle cramps? My legs like to cramp up a lot especially after physical type work?
    lovbyts likes this.

  29. #29
    lovbyts's Avatar
    lovbyts is offline Knowledgeable Member
    Join Date
    Apr 2008
    Posts
    29,450
    Quote Originally Posted by wolves42 View Post
    What would be the best thing to take for muscle cramps? My legs like to cramp up a lot especially after physical type work?
    Hot bath with Epson salts helps also.

    I think you already said you do but make sure you supplement with Vit D. Most of us dont get enough.

  30. #30
    Bonaparte's Avatar
    Bonaparte is offline AR-Hall of Famer
    Join Date
    Aug 2009
    Posts
    13,504
    Quote Originally Posted by wolves42 View Post
    What would be the best thing to take for muscle cramps? My legs like to cramp up a lot especially after physical type work?
    Magnesium deficiency is usually the culprit.

  31. #31
    wolves42 is offline Junior Member
    Join Date
    Apr 2012
    Location
    Colorado
    Posts
    58
    Yeah, I'm sill running vitamin d, I'm going to have a blood test done to see what I'm lacking, if I am at all.

  32. #32
    Learn1st's Avatar
    Learn1st is offline Female Member
    Join Date
    Feb 2016
    Location
    NY
    Posts
    30
    Quote Originally Posted by Bonaparte View Post
    Magnesium deficiency is usually the culprit.
    Really dehydration is the culprit but low magnesium can exacerbate the problem. Add calcium water and as stated above magnesium for a quick fix, then mak sure you keep yourself hydrated daily so you don't get to the point of leg cramps.

  33. #33
    GirlyGymRat's Avatar
    GirlyGymRat is online now Knowledgeable ~ Respected Female Leader ~
    Join Date
    Oct 2010
    Location
    In a gym!
    Posts
    14,644
    Quote Originally Posted by lovbyts
    Hot bath with Epson salts helps also. I think you already said you do but make sure you supplement with Vit D. Most of us dont get enough.
    I switched to Dead Sea salts. Epsom salts so 2008. :P
    lovbyts likes this.

  34. #34
    lovbyts's Avatar
    lovbyts is offline Knowledgeable Member
    Join Date
    Apr 2008
    Posts
    29,450
    Quote Originally Posted by GirlyGymRat View Post
    I switched to Dead Sea salts. Epsom salts so 2008. :P
    Yes that's true, I do like Dead Sea salts. Every once in a while you can find good deals on it.

  35. #35
    GirlyGymRat's Avatar
    GirlyGymRat is online now Knowledgeable ~ Respected Female Leader ~
    Join Date
    Oct 2010
    Location
    In a gym!
    Posts
    14,644
    Quote Originally Posted by lovbyts
    Yes that's true, I do like Dead Sea salts. Every once in a while you can find good deals on it.
    Order bulk (20#) from San Francisco sale co. Very nice.

  36. #36
    Juced_porkchop's Avatar
    Juced_porkchop is offline Knowledgeable Member
    Join Date
    Jul 2012
    Location
    Canada
    Posts
    2,643
    Quote Originally Posted by wolves42 View Post
    What would be the best thing to take for muscle cramps? My legs like to cramp up a lot especially after physical type work?
    i would also rec 2g taurine ed. great not just for that but many other things. its cheap in bulk powder too. i use it daily

  37. #37
    Score's Avatar
    Score is offline Associate Member
    Join Date
    Mar 2014
    Posts
    222
    My doc told me to drop fish oil, said the risk of it being rancid is higher than any value it could offer.

  38. #38
    Bonaparte's Avatar
    Bonaparte is offline AR-Hall of Famer
    Join Date
    Aug 2009
    Posts
    13,504
    Quote Originally Posted by Score View Post
    My doc told me to drop fish oil, said the risk of it being rancid is higher than any value it could offer.
    In gel capsules, mixed with vitamin E? Bullshit.

  39. #39
    Score's Avatar
    Score is offline Associate Member
    Join Date
    Mar 2014
    Posts
    222
    Quote Originally Posted by Bonaparte
    In gel capsules, mixed with vitamin E? Bullshit.
    I've never had the type mixed with vitamin e, nor mentioned it to him.

    My GP is a trt advocate and user, so every time I see him we talk about it. Did a quick run down of sups to which he said cut fish oil. I took away it was more of distribution issue than a product issue.

  40. #40
    Bonaparte's Avatar
    Bonaparte is offline AR-Hall of Famer
    Join Date
    Aug 2009
    Posts
    13,504
    Quote Originally Posted by Score View Post
    I've never had the type mixed with vitamin e, nor mentioned it to him.

    My GP is a trt advocate and user, so every time I see him we talk about it. Did a quick run down of sups to which he said cut fish oil. I took away it was more of distribution issue than a product issue.
    They basically all include vitamin E, listed as "mixed tocopherols".

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •