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09-27-2010, 07:57 AM #1
Please help save my daughter's life
Rett Syndrome is taking my girl away from me, and she needs the cure available to her that has already been found to work in mice, but not yet FDA approved for humans yet. Rett Syndrome is considered the most severe form of autism in girls which usually kills boys in the Mother's womb because of how it is genetically caused. The only thing in the way of a cure is more funding and this is where Pepsi and you are stepping up.
We need at least a 2nd or 1st place spot to get the 250k Pepsi will give our researchers for a cure for Rett Syndrome which my daughter has and is a very life threatening condition. Her and over 30,000 other girls in the US are fighting for their lives while researchers find new ways to help them. Successful treatments have been found indeed, but it is expensive to get through the FDA approval process for approving the drugs that help.
Please help us by voting daily through September 30th. Every single vote counts as we saw last month when we lost by literally just a few votes and ended in 3rd at the very last 30 minutes of voting.
If you would like to help, please do so by taking 5 seconds of your life to vote which could mean changing my daughter's entire life.
Vote here
http://www.refresheverything.com/rettresearchtoreality
Fast vote here:
http://www.refresheverything.com/search/?q=Rett
Iphone and mobile browser Votes:
http://pepsirefreshmobile.gmrmarketi...8-0019b9b9e205
Or text vote here:
Text* 100842 to
Pepsi (73774)
*Standard text messaging rates apply.
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09-28-2010, 01:54 PM #2
any votes at all would be great. thanks
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09-28-2010, 03:19 PM #3
Right you bastards i expect you to vote everyday for this, We have had goes at this before and let lavinco down. It costs nothing and 10 seconds of your life which could mean a lot more to this mans life and his daughters
Lavinco im going to spread this everywhere i can.
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09-28-2010, 03:46 PM #4
Sup my misc buddy
Voted again
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Voted....
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09-28-2010, 04:33 PM #6
I thought it had made it last time.
Voted.
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09-28-2010, 04:37 PM #7
D7M any chance you could talk to admin about this being put in Q&A where there is more traffic? it has been done before.
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09-28-2010, 04:46 PM #9Associate Member
- Join Date
- Sep 2010
- Location
- NY
- Posts
- 154
Voted man!
Wish u and ur daughter the best!
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09-28-2010, 06:21 PM #10
about to vote....
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09-28-2010, 06:33 PM #11
voted bro , wish you and yours all the best
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09-28-2010, 07:31 PM #12
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09-28-2010, 07:32 PM #13
Thanks for asking.
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09-29-2010, 02:23 AM #14
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09-29-2010, 02:27 AM #15
i moved it to this section which get more traffic and urge everyone to vote. i also left a redirect in the lounge so members can still enter thru there
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09-29-2010, 03:33 AM #16
Just saw this and voted also.
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09-29-2010, 05:14 AM #17
voted again.
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09-29-2010, 05:17 AM #18
Voted !
Been there with you a few months .
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09-29-2010, 06:17 AM #19
Done
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voted
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09-29-2010, 07:31 AM #21
Thanks a million. These last 2 days will be feirce as others try to hijack our position as they did last month. Every single vote counts.
Everyone can actually vote 3 ways if they want to help a little more.
Text 100842 to Pepsi at (73774) to Vote for us.
Vote on facebook: http://apps.facebook.com/pepsirefres...9b9e205?ref=mf
Vote on the Pepsi site by creating a separate login: http://www.refresheverything.com/rettresearchtoreality
Thanks for all the help.Last edited by Lavinco; 09-29-2010 at 07:40 AM.
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09-29-2010, 07:53 AM #22Junior Member
- Join Date
- Aug 2010
- Posts
- 85
Just voted!! Good luck with ur little girl!!
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09-29-2010, 08:03 AM #23Junior Member
- Join Date
- Jun 2008
- Posts
- 56
Voted
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09-29-2010, 11:41 AM #24Associate Member
- Join Date
- Jul 2010
- Location
- Matthews, NC
- Posts
- 211
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09-29-2010, 12:25 PM #25
voted again today and put it as my facebook status.
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09-29-2010, 12:57 PM #26
registered and voted. i'll pray for your daughter as well.
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09-29-2010, 12:59 PM #27
my vote is in...
I also sent the quick vote link to everyone in my office.
we are about 60+ here and one of the owners here his son has Autism.
http://www.refresheverything.com/search/?q=Rett
All the best...
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09-29-2010, 03:00 PM #28Junior Member
- Join Date
- Sep 2008
- Posts
- 95
Voted!
Haven't been on this forum for ages for problems in my personal life... But just back and happy to help because this community is soooo helpful.
I frequent a few forums for my work and this is without a doubt the most helpful forum I use!
Ive got a little girl and I would fight for her and die for her like you and I am happy and privileged to vote for you each and everyday.
Keep fighting for her, with the help of the rest of the guys and girls, we'll get you the help you need!
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09-29-2010, 05:36 PM #29Associate Member
- Join Date
- Oct 2009
- Posts
- 242
voted i pray to allah she will get the money
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09-29-2010, 11:16 PM #30
Voted.
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09-29-2010, 11:26 PM #31
I lost my daughter at 6 months.....VOTED.....Best of luck to you. Really awesome thing you are doing.
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09-30-2010, 12:09 AM #32
bump
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09-30-2010, 01:14 AM #33
Todays Vote in, keep them coming boys!
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09-30-2010, 02:50 AM #34Junior Member
- Join Date
- Feb 2010
- Posts
- 87
****ing FDA. They kill more people than they save. They are actually in the business of killing people by denying them drugs and are even incentivized to do so.
Hope your daughter makes it.
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09-30-2010, 07:42 AM #35
You guys have all been great.
One final thought for the last day of voting:
Rett Syndrome is very life threatening and I wish it on no one in life at all. No child should have to be struck with this disease or any other. Some people call it a severe form of autism, while others can be misdiagnosed with cerebral palsy, scoliosis, heart disease, lung disease, and many more. The fact is, it is all of these things combined. Rett Syndrome attacks the nervous system starting with the gene mutation of the mecp2, cdkl5, or the foxg1 gene(s).
That single bad gene that everyone needs to function properly causes all the bad things to happen. Thank God that money raised before in the past has gotten us to where we are today. Rett Syndrom was first noticed in the late 50's to early 60's. It was not known what caused it until 1999 and once that was discovered, researchers found a way to actually reverse this genetic disorder in mice in 2007.
Rett Syndrome is the first genetic disorder ever reversed in mice, and could be the first one reverse in humans.
In 2008, researchers found a safe way to "partially" reverse Rett Syndrome in humans. Here is that research:
http://www.pnas.org/content/106/6/2029.long
In 2010, 10 lucky girls will be volunteered to participate in a clinical trial to see if the partial reversal that worked in mice, works in girls with Rett Syndrome too. If this works, 2 years from now or sooner, my daughter will have the same treatment option.
This is where the funding goes, this is how Pepsi is helping, and this is how you can get involved by simply casting a vote for our cause. It costs millions to research this stuff. The clinical trial alone will cost between 2 and 5 million dollars. So without money, no one gets saved.
Today is the last day we vote. At midnight, the voting will end and at 6am tomorrow, the winner will be announced.
Please vote now at:
http://www.refresheverything.com/rettresearchtoreality
If you have a cell phone text 100842 to Pepsi (73774)
Thanks for your vote. It means the world to me, and my daughter is my world.
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09-30-2010, 08:19 AM #36
voted, and hopeing for the best. i dont know how ill lift lated with my fingers crossed.
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09-30-2010, 09:11 AM #37
voted... best wishes
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09-30-2010, 07:12 PM #38
3 hours left. Please keep voting because the eleven o'clock news can change a lot for us if our competition below is get on like last month.
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09-30-2010, 09:45 PM #39
15 minutes left. Get your final vote(s) in if you have not done so today.
Thanks
refresheverything.com/rettresearchtoreality
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10-01-2010, 05:42 AM #40
Voted many times and from what i can see we made it to no1
Am i right Lavinco?Last edited by sigman roid; 10-01-2010 at 05:44 AM.
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