Pituitary Tumor

[S2King1223]

I found out 6 years ago that I have a pituitary tumor (adenoma.) Was just curious to see if anyone else on the board has been diagnosed with one. If so, are you using AAS?

[600@50]

My wife had a pit tumor rupture 18 months ago when she got Rocky Mountain Spotted Fever. Even though her pituitary no longer functions and she has to manually adjust her hormones she is doing better than before the RMSF. She says she feels better now than she can remember. Her pit tumor was not diagnosed prior to the illness.

[Times Roman]

Can it be removed?

[Atomini]

I think Kelkel has the same condition. He should chime in here.

[S2King1223]

Yes it can be removed. Is Kelkel on AAS? I would really like someone to chime in!

[gearbox]

send him a pm. awesome dude

[Atomini]

I sent him a PM linking him to this thread. Should hear from him soon. And yes, he uses AAS.

[kelkel]

Hi S2. Yes and yes. I found out several years ago that I had a microadenoma. I'll shoot for brevity here but I'll surely fail. Went for a yearly physical, all the usual crap. He weighed me and I was about 10 lbs under what I was the prior year. I did not realize it as I never get on the scale, ever, other than doc appts. He told me to sit down, asked me how I was feeling then said he needs to send me to get an MRI of the brain as he thinks I may have a tumor based on what he was seeing in the bloodwork. Basically I was trying not to throw up after hearing that statement. My T went from what was considered normal to 59. Doc said shortly it probably would have been nil.

So, I run out of the office and go to a local MRI facility near me but it was to late to get it done. It was Friday so I had to sweat it out over the weekend until Monday. That was not fun. Got it done and results came in late on Wednesday. They will not fax them or tell you via phone so I had to drag my son (8 at the time) with me to be handed the positive results. Lovely.

My pituitary is 6mm and the tumor is 2mm. Hence, microadenoma. It was not prolactin secreting. It just shut down my T. This lead to beginning therapy on Androgel which went well for about a year even though I wasn't quite getting to where I wanted to be and I was applying a lot of 1.62% gel. I also began self educating on the topic and soon my GP referred me to an endo as I think he felt an endo could "handle me" and all my questions better. The endo sucked and after about 6 months I fired him during a visit. He could not answer my questions or was just plain dismissive of them. There was no doubt by this time I knew more about my problem than he did and told him to stick to diabetes and metabolic diseases. I've talked about this a bit in other posts but the guy called my cell later that night to discuss me leaving and I guess try to bring me back. Seems his ego was hurt.

I subsequently landed with a Euro who is top notch. At the first visit I told him that I'm in charge of my health and he is here to help me. If he can't work under those conditions then I have to move on. I basically manage my own health with his supervision. We discuss everything and I hold nothing back from him. I go in with a detailed list of scripts and how I want them written. As long as what I request is logical it will be written. Even gave me his personal email in case I need anything. I consider myself extremely fortunate to have landed with him.

I can fill you in on my standard TRT dosage if you want me to as well. If you're referring to cycles, it's minimal for me anymore. Although after an upcoming doc appt I plan on blasting a bit. But the little bit I do now in no way compares to a "standard" cycle by the vast majority. What I seem to have built over the years seems to stay pretty easily for me now. Just trying not to shrink and if I can add a little lbm I'll be a happy man.

Told you it was long. So, how can I help you?

kel

[S2King1223]

I cannot thank you enough for this very informative post Kel.

Mine does in fact secret prolactin. Does your show up as a bright spot on the MRI? For example, my pituitary shows up as a bright white spot compared to the rest of the brain. I am a month into my first cycle of test 500/wk and feel great both in gym and out.

[kelkel]

Don't recall without finding the MRI but will try to look. Did the tumor hamper any T production as well?
Hopefully your running an AI with your cycle, right?

kel

[S2King1223]

Aromasin 12.5 EOD. Didn't start until week 3 however because I had no signs of gyno and only on 500mg test/wk. Finding out that my blood pressure creeped up to 164/98 was a very good reason for me to start AI asap. It would be great if you could look at your MRI for me however and let me know about the bright spot. Thanks man.

[kelkel]

Always run the AI. Gyno's only one visible symptom of high E. There are many other internal symptoms. I will look. Gotta figure out where I shoved it, that's all.

[Ashop]

Yes it can be removed. Is Kelkel on AAS? I would really like someone to chime in!

Whats your doctor suggesting for you to do?

[Honkey_Kong]

I cannot thank you enough for this very informative post Kel.

Mine does in fact secret prolactin. Does your show up as a bright spot on the MRI? For example, my pituitary shows up as a bright white spot compared to the rest of the brain. I am a month into my first cycle of test 500/wk and feel great both in gym and out.

Do they have you on caber or bromo for that tumor? If not you need to find another doctor/surgeon that has a course of action to treat the tumor.

[je909ki]

I just found out a few weeks ago that I also have a Pit tumor that's 3mm. I'm going to a neurosurgeon in a week to get it taken out. Ive been dealing with the symptoms for a year now and finally found a new doc who cared and he found it right away. My test was 100 and the Doc has me on 100mg Test Cyp a week now until my surgery.

[steroid.com 1]

Are you sure you really need to take it out?

Usually surgery is the absolute last resort remedy like when the tumor gets to big and puts pressure on the optic nerve.

In most cases, not all, drugs will keep you in check.

BTW, the symptoms of these tumors is a kin to Hypogonadism and Hypothyroidism...not good.

[kelkel]

Definitely get a second opinion on the necessity of this procedure before you enbark on it. Most tumors, unless they are macroadenomas are not removed, only monitored. If actively secreting then surgery may be your option. But, there may be more reasons that your doc has for suggesting this. Fill us in please...all relevant to this thread.

Study this: http://pituitary.mgh.harvard.edu/Tra...dalSurgery.htm

kel

[je909ki]

The doctor recommended I get mine removed because it is causing me constant dizziness, shut down my testosterone and Cortisol, and daily panic attacks and depression.

[kelkel]

Good reason then! Please initiate a thread after you get this procedure done and fill us in on how it goes for you. Very relevant to some of us here.

Thanks and best of luck,

kel

[je909ki]

Good reason then! Please initiate a thread after you get this procedure done and fill us in on how it goes for you. Very relevant to some of us here.

Thanks and best of luck,

kel

I for sure will