diagnosis for TRT thrapy

[vinny t]

For those of you who are on TRT ,Why did you need TRT, what was the cause , what was your diagnosis , who diagnosed you and what tests were done and how long did it take to confirm diagnosis and your need fot TRT ?

Thanks in advance ?

[kelkel]

Tumor diagnosed by MRI. No question about needed TRT when at a 59T level and dropping.

[64509chvl]

Well, lemme tell ya, lol! From the time I had my levels checked out due to symptoms to the time I started with LowTestosterone.com was about a year. Levels throughout the year (got checked about 3 times) were always about here...lab corp ranges.
Total T...250-325
Free T...9-10
FSH...3
LH...2.2

I saw my GP about 3 times on this subject bringing in documentation & good solid reading on Low Testosterone & he kept saying there's nothing wrong with me.
Changes To another doctor (Kaiser health care)...brought in all the same stuff & explained everything very politely & asked what we can do do be rid of my symptoms...he atleast went in the right direction. Did an MRI to rule out Pituitary issues (clear), did a sleep apnea test (clear), checked Thyroid but of coarse only TSH (2.6), he says it's all good & I'm in good health...nothing we could do! Says no way I have Low Test symptoms since I appear to be in good shape!
To add I've been training for the previous year & a half & dropped 40lbs & learned a lot on Nutrition in hopes of feeling better in general. I looked better, but still felt lame.
So enough was enough & I came to realize I would get no help through my health care & talked with a few clinics & ended up signing on with LowTestosterone.com. Went over my blood work with the LowT Dr. & it was said that I was a little of both, Primary & Secondary. Said nothing will fix it but TRT is an option to get me right again. So I took the plunge & it's been 8.5 months on TRT.
Many symptoms have improved or completely went away...took a while to get dialed in after trying diferent doses & such to see where I felt best. So generally I feel good again, but I still have a couple annoying issues...feel pretty tired at times & a bit lethargic no matter if I'm eating at maint. Or a caloric surplus.
I dug deeper into my Thyroid & my FT4 & FT3 are below & at bottom of range...I checked adrenals, cortisol & antibodies...all are good. So looks like I'm gonna do a trial run of NDT to see how I respond to it. I wish I was better educated on this earlier cause I would've tried this before starting TRT, but my wonderfull GP said my Thyroid was fine by only looking at TSH & he should've looked deeper knowing my symptoms & seeing TSH level that is questionably elevated close to 3.

So that's my ride so far ! I def feel better but still trying to improve myself a bit, lol!

[64509chvl]

Damn...too much coffee this morning, long winded, lol !

[vinny t]

Tumor diagnosed by MRI. No question about needed TRT when at a 59T level and dropping.

Was that pituatory tumor? so was it secondary hypogonadism?

What TRT protocol are you on pal ?

[vinny t]

Well, lemme tell ya, lol! From the time I had my levels checked out due to symptoms to the time I started with LowTestosterone.com was about a year. Levels throughout the year (got checked about 3 times) were always about here...lab corp ranges.
Total T...250-325
Free T...9-10
FSH...3
LH...2.2

I saw my GP about 3 times on this subject bringing in documentation & good solid reading on Low Testosterone & he kept saying there's nothing wrong with me.
Changes To another doctor (Kaiser health care)...brought in all the same stuff & explained everything very politely & asked what we can do do be rid of my symptoms...he atleast went in the right direction. Did an MRI to rule out Pituitary issues (clear), did a sleep apnea test (clear), checked Thyroid but of coarse only TSH (2.6), he says it's all good & I'm in good health...nothing we could do! Says no way I have Low Test symptoms since I appear to be in good shape!
To add I've been training for the previous year & a half & dropped 40lbs & learned a lot on Nutrition in hopes of feeling better in general. I looked better, but still felt lame.
So enough was enough & I came to realize I would get no help through my health care & talked with a few clinics & ended up signing on with LowTestosterone.com. Went over my blood work with the LowT Dr. & it was said that I was a little of both, Primary & Secondary. Said nothing will fix it but TRT is an option to get me right again. So I took the plunge & it's been 8.5 months on TRT.
Many symptoms have improved or completely went away...took a while to get dialed in after trying diferent doses & such to see where I felt best. So generally I feel good again, but I still have a couple annoying issues...feel pretty tired at times & a bit lethargic no matter if I'm eating at maint. Or a caloric surplus.
I dug deeper into my Thyroid & my FT4 & FT3 are below & at bottom of range...I checked adrenals, cortisol & antibodies...all are good. So looks like I'm gonna do a trial run of NDT to see how I respond to it. I wish I was better educated on this earlier cause I would've tried this before starting TRT, but my wonderfull GP said my Thyroid was fine by only looking at TSH & he should've looked deeper knowing my symptoms & seeing TSH level that is questionably elevated close to 3.

So that's my ride so far ! I def feel better but still trying to improve myself a bit, lol!

Thanks for your reply

[clarky.]

Mine was because of a PT no libido sleeping all day no nrg at all went to doc and asked her to check my test she did and more. My test came back at 2 you know the ranges in the uk vinni its somthing like 10-30 somthing i think so it was rock bottom.

She referred me to a endo you know the rest test after test and the mri picked up the PT. How you getting on now vinni are you back on your trt yet ?.

I didn't know much about the results on paper it was kel who explained everything to me very smart man.

[vinny t]

Mine was because of a PT no libido sleeping all day no nrg at all went to doc and asked her to check my test she did and more. My test came back at 2 you know the ranges in the uk vinni its somthing like 10-30 somthing i think so it was rock bottom.

She referred me to a endo you know the rest test after test and the mri picked up the PT. How you getting on now vinni are you back on your trt yet ?.

I didn't know much about the results on paper it was kel who explained everything to me very smart man.

My test levels is 1.4nmol/ lmy endo wont put me back on TRT he wants me to wait at least six months to see if i regain natural testicular function, from replies on here nobody thinks rhat will ever hppen but my endo who is mediclly trained seems to think there is a chance.

[kelkel]

Was that pituatory tumor? so was it secondary hypogonadism?

What TRT protocol are you on pal ?

Yes, a microadenoma. My pituitary is 6mm, the tumor is 2mm. Protocol currently is 70mg x 2 per week with hcg at 250iu's M-W-F. No AI needed.

[clarky.]

My test levels is 1.4nmol/ lmy endo wont put me back on TRT he wants me to wait at least six months to see if i regain natural testicular function, from replies on here nobody thinks rhat will ever hppen but my endo who is mediclly trained seems to think there is a chance.

1.4 fvck vinny. 6 months thats going to be rough how long since you stoped your trt now you got long to go ?. Did you get your bloods sorted ? you ok now ? i've not been on ukm for a long time that place is pure sh*t mate they have no fvcking clue there they all follow the one fvcking muppet he joined here a long time ago but dosen't come on much as he is just a normal person here lol with out dated knowledge.

[vinny t]

Yes, a microadenoma. My pituitary is 6mm, the tumor is 2mm. Protocol currently is 70mg x 2 per week with hcg at 250iu's M-W-F. No AI needed.

70mg of what pal ?

[vinny t]

1.4 fvck vinny. 6 months thats going to be rough how long since you stoped your trt now you got long to go ?. Did you get your bloods sorted ? you ok now ? i've not been on ukm for a long time that place is pure sh*t mate they have no fvcking clue there.

I have been off trt since january so i have already done 6 months , yes blood been sorted im under the care of a haematologist , i had 8 blood draws to get my hematoctrit levels down then been in range now for a while without further blood draws.

I will post up my blood results since stopping trt;


3 weeks after last shot testosterone 10.0 nmol/l lh 0.1 (1.0-8.0) fsh 0.3 (1.0-11)

7 weeks after last shot testosterone 8.6 nmol/l lh 0.1 (1.0-8.0) fsh 0.3 (1.0-11)

10 weeks after last shot testosterone 6.8 nmol/l lh 0.1 (1.0-8.0) fsh 0.3 (1.0-11)

14 weeks after last shot testosterone 3.4 nmol/l lh 0.8 (1.0-8.0) fsh 4.0 (1.0-11)

16 weeks after last shot testosterone 1.8 nmol/l lh 5.6 (1.0-8.0) fsh 11 (1.0-11)

24 weeks after last shot testosterone 1.4 nmol/l lh 13 (1.0-8.0) fsh 17 (1.0-11)


My test levels have been decreasing since stopping trt in jan and they are rock bottom now .
My endo wants me to keep me off trt .

I will post up letter fromn him that i just got after this weeks visit to him .


I have spoken to my endos secretary today on the phone i asked for a copy of the letter that is going to go out to my gp in connection the endo appointment that i just had , the secretary as emailed me a copy i have eliminated my pefsonal details here is the letter


Division of Diabetes & Endocrinology

Consultant: Dr A Jostel Royal Blackburn Hospital
Secretary: Mrs Anali Cottam Haslingden Road
BLACKBURN
Direct line: 01254 734469 BB2 3HH
Ext: 84469
Fax: 01254 736311

Our Ref: AJ/KB/RXR0719778


30 June 2014

ENDOCRINE CLINIC


Private & confidential
Mr V



Dear M– Dob 31.12.66


Diagnosis:
Anabolic steroid misuse

I saw you in the endocrine clinic today. You have been under the care of my endocrine colleagues off and on since 2009 until March last year. The uncontrolled use of anabolic steroids did result in secondary polycythaemia which was recently rectified with repeated venesections and abstinence from testosterone and anabolic steroid injections. The fact that your haemoglobin did not rise any further, and the fact that your gonadotropin levels have only just risen into double figures, confirm that stopping exogenous testosterone excess is effective in eliminating the side-effect of polycythaemia and there is evidence of a potential for physiological recovery by reactivating your own pituitary gonadal axis.

In order to see the effectiveness of this approach, we need to let at least six months pass and reassess your hormonal profile after that time. The misuse of any anabolic steroids or testosterone in the meantime will jeopardise that natural recovery and will be evident on falling gonadotropin levels.

I will review you again in six months’ time.

Yours sincerely




Dr ANDREAS JOSTEL
Consultant Physician
(Endocrinology/Diabetes/Acute Medicine)
GMC Number: 4342247

[kelkel]

70mg of what pal ?

Cyp.

[clarky.]

Thats rough vinny your back to where you started at least your haematocrit is ok now.

[vinny t]

Thats rough vinny your back to where you started at least your haematocrit is ok now.

Yes back to where i started 4 years ago , yes hematocrit is fine now

Thanks pal