HCG with Pituitary Tumor

Hi, I have a pituitary tumor, I take levothroid, HGH, and testosterone because of it. I am 61 now, it took me til my fifties to even find the damn tumor, and the doctors weren't much help.

I am going to order some HCG to combat testicle shrinkage, but I am having a hard time finding out if it goes THROUGH the pituitary, and if it would work, or work as well in my case.
Other concerns are if it will mean I need less testosterone, what are the clues to finding a reputable seller, and I guess the other questions will answer themselves.
Here is my chart showing 4 separate blood draws, it seems the LH and FSH are functioning. but if anybody has some input on this to get me started, I'd appreciate it. Google doesn't have much and I don't see my Urologist for a few more months.

TRT lowers your LH and FSH. The feedback system sees "enough" T and tries to turn it down.

I beleive that the HCG is a direct mimic of FSH (could be LH, I forget). It does not need to be converted to anything and thus would act directly in the testes. Being secondary due to the tumor you should see a response in test. levels from the HCG.

If HCG increases your testosterone without testicle shrinkage, why would anyone take testosterone?

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Originally Posted by buttslinger

If HCG increases your testosterone without testicle shrinkage, why would anyone take testosterone?

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You need active functioning leydig cells in your testes for hcg to work and be able to make the test. Hcg works for secondary hypogonadism

Thanks, whenever I ask my doctors about HCG, they say that's for making babies.
According to Science, pituitary tumors are present anywhere from 2% to 25% of the population. I went to the gym in my twenties and thirties, when I hit forty I couldn't do it anymore. I think it is possible some guys here have a pituitary tumor, and lifting weights is a reaction to it. Self-Medication.
To make a long story short, I guess I'll just order some HCG and see what happens.

I have a pituitary tumor, and I took HCG for almost 6 months, I had a great response to it but I had to stop cause I moved back to Brazil, and HCG is not sold here... :(

Thanks, I plan on getting some HCG to try, I think I'll get it without the bac water kit and just use when I use my testosterone, good excuse to go to twice a week. If I like the results, I'll adjust my game plan.

How are you going to use it without bac water?

I'll just use the water that comes with it, but I won't spring for the KIT that has additional water, mixing vials, and insulin needles.
I think I can do that, this is new territory for me.

Have your doctor look at the package inserts for most HCG brands, including the one above. It lists one of the uses as Hypogonadic Hypogonadism. Google it, print it and take it to your doc.

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Originally Posted by buttslinger

Hi, I have a pituitary tumor, it took me til my fifties to even find the damn tumor, and the doctors weren't much help.

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Can i ask how they eventually found it? Did they not do an MRI until the last minute? Or was an MRI ordered and nothing noticed?

What do you attribute them finding it to? I always love to hear stories of inept doctors and what they failed to do, that results in someone finding out they have a tumor 10 years after the fact.

My guess is they refused to run an MRI on your brain and instead ran a CBC or some other useless tests, then sent you home healthy. When they finally agreed to run the MRI in your 60's they found the growth?

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Originally Posted by kelkel

Have your doctor look at the package inserts for most HCG brands, including the one above. It lists one of the uses as Hypogonadic Hypogonadism. Google it, print it and take it to your doc.

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both my urologist and endocrinologist said testosterone is what I need, and HCG is for making babies. My endo graduated med school like last year, my urologist gradated when I was two!! He was my Dad's doctor!
I'm going to have to go shopping for a new doc, because he is going to retire real soon.

When they get a tumor or otherwise lose their own production resulting in testicular shrinkage and all the fun that goes along with that, they'll change their opinion. Search up Crisler's papers on HCG and make them a copy. There are LH receptors throughout the body, not just our testicals.

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Originally Posted by Trenchant7

Can i ask how they eventually found it?
What do you attribute them finding it to? I always love to hear stories of inept doctors and what they failed to do, that results in someone finding out they have a tumor 10 years after the fact.

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Jeez, to make a long story semi-short, I lost my job, my house, my health almost twenty years ago. At first I had to go out on Severe Depression, then they did what's called a tilt table test, they strap you onto a table and tilt you up 70 degrees, after 7 minutes my blood pressure started plummeting, that gave me enough to retire on, and know it is not all in my head.

Some "Jungle Juice" from GNC that mimicked steroids got me looking at my glands, and some acclydine was supposed to raise my GH levels, but it didn't, so that was firming up evidence that my suspicions were right, and I had the bad pituitary. Now comes the nightmare of trying to convince the doctors. I saw on an episode of the Sopranos Dr Melphy said "What do I do if I find out my patient had a pituitary tumor, look the other way?"
That's when I knew that I had a rough road ahead. They gave me an arginine test first, and that showed my pituitary didn't work. Even with the test results in his hand, the doctor said I was OK. A few more months and a few more doctors and I got to meet Dr Berman, he was Chief Supreme Court Justice Rehnquist's doctor who treated his thyroid cancer. He was a fantastic doctor who turned me over to his buddy at Johns Hopkins. And he greenlighted everything. Three doctors gave three different interpretations of my MRI. Hopkins gave me the advanced version of the arginine test that was no fun at all but it gave Hopkins the clear power to get Blue Cross to shell out thousands for my HGH.
To be honest I did not see the night to day results I was hoping for, but once they had the pituitary result they started finding other things in that neighborhood like a bit of osteoporosis and diabetes, that they missed before.

I would say if you are curious that you may have the pituitary flaw, start with the arginine test, it takes an hour and they draw blood every 15 minutes after injecting you with arginine. It's cheaper than an MRI and in my case the results were EXACTLY the same as the more drastic test that you insurance company needs to see.
I had two MRIs, a couple docs said mine was small but normal, or normal, the third guy said it was empty cella, in other words a tumor had sheared off some off the pituitary when I was a kid, then dissolved away, leaving a small empty space.
I feel like this jibes with my life experience, it makes sense to me finally, a little peace, I don't go charging around to doctors or go to Chronic Fatigue Groups anymore. I used to pass out running in the heat as a kid, and I always looked young.

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Originally Posted by kelkel

When they get a tumor or otherwise lose their own production resulting in testicular shrinkage and all the fun that goes along with that, they'll change their opinion. Search up Crisler's papers on HCG and make them a copy. There are LH receptors throughout the body, not just our testicles.

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My plan right now is to try the HCG first, and go from there.

Wow that is a crazy story. Thank you for sharing. Your first post says you currently have a tumor. But your post immediately above says you had one as a child and it left a gap. I can see a situation like that being a lot more difficult to diagnose. I know I have a pituitary axis dysfunction of some sort. And I've already had a brain MRI but they were looking for multiple sclerosis. Found nothing. But I often wonder if my radiologist was even paying attention to my pituitary. Good luck.

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Originally Posted by Trenchant7

I know I have a pituitary axis dysfunction of some sort.

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I suggest starting with concrete evidence to present to your doctor, besides the six hormones, GH, LH, FSH, TSH, PRL, and HTCH, the pituitary regulates blood pressure, and all kinds of stuff. They told me the greatest loss to your health is QUALITY OF LIFE. Maybe that rings a bell, but if you tell that to a doctor, they have nowhere and everywhere to start. They make Educated Guesses, and start with the diagnosis The Odds say is most likely. If you go get the MRI from the Hospital you can shop it around to other doctors, they probably have it on disc. It took me almost two years, the best doctors have six month waiting lists, but they're worth it. Good luck to you also.