
Originally Posted by
thisAngelBites
Glad to hear you are getting another mind to help you think about it all.
I get that you really are desperate to help; it's miserable to not sleep well.
My gut feeling is that you're not likely to find a magic bullet with a systemic illness that affects so many things, and with a biomarker that is involved in so many biological processes. But hey, if her adrenals are properly supported, maybe the new endo will give you a scrip so you can be sure you have real stuff and give it a go.
If I were you, I would consider helping her with a very low inflammatory diet, and might try some other radical, non-proven but non-harmful things to help reduce inflammation, like cold/ice baths. There's a neurosurgeon in New Orleans, I think, who has gotten really good results with systemic inflammatory diseases using cold therapy. He's definitely unorthodox, and a little crazy, but I did notice a lot of people who follow him got good improvements in sleep.