Help cure my Daughter

[Lavinco]

Yes dropping a spot was unexpected and it shows how tough this can be. This is why every single vote counts.

[Older lifter]

Will keep going at it mate,,,,,

[energizer bunny]

to the top.....

[Apanda]

Just saw this, voted and will continue. Good luck.

[scorpion62]

voted

[not so slim]

bump

[Older lifter]

Voted, can you believe the 1st place holder at the moment is for a weight room at a school or something?? I mean i love weights but i think this is a bit more important

[adzy]

voted and bumped!

[gixxerboy1]

Voted, can you believe the 1st place holder at the moment is for a weight room at a school or something?? I mean i love weights but i think this is a bit more important

i was suprised too.

voted agian

[Matt]

Still voting..

[Ernst]

Me too.

I just realized you get 10 votes daily, but can only vote for each idea once. I used my other votes for ideas I like not competing in the $250k bracket against rett research.

[Igifuno]

bump for Friday voting. Get it done bruthas..

[scorpion62]

voted

[Older lifter]

Todays done

[Showdog]

You got my vote.... Come on guys everyone counts. Lets go.

[cherrydrpepper]

You got mine again. lets get this..

[gixxerboy1]

voted again

[Igifuno]

Bump for Saturday voting..

Still 14..

Lavinco, I posted it up to my FB profile as well and my friends to help.. hopefully we'll see some positive movement here..

[scorpion62]

voted

[Bertuzzi]

Voted!!

[Older lifter]

Todays done,,,,, need more votes, it's not moving up

[Igifuno]

I shared this on my FB page today as well and had my wife do the same, we have some friends voting as well..

[Matt]

Down to 13 again...

[scorpion62]

voted

[Igifuno]

Bump for Father's Day voting.. get it done son..

[Older lifter]

todays done

[Bertuzzi]

Voted again today.... Told my GF to start voting and I will ask my family to take some time out to help.

[Matt]

More votes needed...

[auslifta]

voted again

[Older lifter]

Got another one in,,,,, we are at 11 now.......

[ylfcm]

Another 1 to the tally

[AlphaGenetics]

done

[Lavinco]

Got another one in,,,,, we are at 11 now.......

We are getting real close now. We can do this. Seriously, just 10 more spots to go for at least the 2nd position which is also a qualifying spot.

Let's do it! My daughter really needs this along with the thousands of others like her.

[Lavinco]

I just learned that if we win the 250,000 research donation from Pepsi that the Pioneer Fund of Colorado is going to match that for a total of $500,000. So this just became twice as important.

All votes count. Thanks guys.

[scorpion62]

Voted 11th place now

[Igifuno]

11th!! Monday voting done son.

[BJJ]

Voted.
I wish all the best to your daughter.

[AlphaGenetics]

bump

[Lavinco]

Voted.
I wish all the best to your daughter.

Much needed and thanks.

She's actually doing well so far compared to many of the girls. We quickly identified allergen foods and other environmental factors which her body is sensitive and allergic to as a result of the genetic mutation.

she still walks, talks about 12 words, and eats with little assistance. Our major concerns right now would be some loss of her hands, major loss of language and a starting sign of krofrosis (outward bend of spine).

We educate and arm ourselves with knowledge and rely on God for wisdom to make the right decisions.

Because most Doctors don't even know about Rett Syndrome, we have had to literally become their advisors and push for certain tests to have an edge on this whole thing.

Rett Syndrome disguises itself as many other disorders all from one bad Gene in these girl's X chromosome. At her age of almost 4, we understand that about 4-6% of here cells have the bad gene active. This little bit does a lot of damage but when it gets above 10% is when the real damage takes place.

Many of these girls will live to be young teenagers, others will be robbed of life even earlier, but some of the "lucky ones" are still alive today nearing 50. Sadly though, they remain very dependent even as adults.

There are literally too many definitions of what Rett Syndrome really is based on what it does to the body in so many ways. My personal observation is that it is a combination of muscle, nerve and neurological disorders. All are equally affected. And because IGF is the discovered partial cure on the horizon, we can only do our best to promote our daughter's own natural IGF production in an effort to slow the regression down while we wait for the final results of the chinical trials in the 12 chosen girls for the study.

It is believed that the IGF will work in our girls as the mice models by actually promoting growth of the dendrite spines within the brain, hence connecting the signals from the brain to the nerves to the body. The final result will be a reversal process of the damage done from being in a dormant and underdeveloped state.

The science is very promising and we are very hopeful. The only road block with and research is money, and this is great that Pepsi is stepping up to the plate to help causes of such great importance.

But Pepsi is not just giving the money out. Instead, it takes thousands of people through a voting system to make our cause worthy of the 250k donation. So people like you will be the reason that our daughters get better.

I know I say it a lot, but I really mean it when I say thank you. You guys just really have no idea how much this means to so many people.

Vote everyday until June 30th. If for some reason we don't make it, we have an amazing backup plan for a July trial as we are now automatically reenlisted in a top spot because we are up so high.

I'll let you in on the July campaign if we fall short for some reason for June. But so far, we are still moving strong.

Takes 5 seconds to vote: http://www.refresheverything.com/rettresearchtoreality

[Igifuno]

Doing this everyday brutha.. my wife and I shared on our FB page and have asked others to as well. We have two daughters and could only imagine how much courage it takes for you and your family.