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Thread: Chronic Fatigue Syndrome
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04-29-2006, 06:04 AM #1Junior Member
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Chronic Fatigue Syndrome
hey guys does anyone else have this prob?? I just found out I have chronic fatigue syndrome....... and it sucks.... I'm in my 30's and have been feeling this way for about 4 yrs now been on my second cycle for the year I thought gear would help some but it doesn't my question is is there anything else that might help me I get so damn tired all the time I can hardly work out I try my damnist but its rough for me to even ride my bike for a long period of time must less working out at the gym . when I start to lift after about 15 min I m ready for a nap and all I wanna do is just keep goin but my body says no and thats something I can't control my doc says there is realy nothing he can do I just have to live with this this gets me so darn frustrated any suggestions guy............. I realy need it.......... any help is better then nothing
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04-29-2006, 06:07 AM #2
just out of curiosity do the doc know anything at all about it..
what causes is?
why it happens?
what exactly happens?
where it happens?
how it happens?
u know what i'm saying, ... how many of these answers do u have?
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04-29-2006, 06:22 AM #3Junior Member
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the doc says it can be caused by many of things stress, depression which comes in many forms. what happens is i m always tired and drained even at work i have to take a 15 min nap because I fell tired it can happen anytime 1 min I feel good the next I feel drained and wanna go to sleep I can even do some yard work and after about 1 hour of mowing or something I have to sit down and rest a nim and I can even dose off then I m back at it again boy do I hate it I mean I it realy can mess up your day to day life
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04-29-2006, 07:13 AM #4
I'd take in lots of vitamins, and focus building power in your legs i dunno
Strong legs are great for energy.
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04-29-2006, 07:16 AM #5Anabolic Member
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read up on CFS and b-12 injections. there some info out there
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04-29-2006, 07:21 AM #6
I know what you're going through bro!
I, myself do not have what your doc says you have, but I have had a sleeping disorder all my life.
I could sleep anywhere on demand at any time and I do remember having a very hard time working out without wanting to take a nap right after I got done working out. It was tough working out for this reason.
Over the last 5-6 years it had gotten worse until I finally went to the doc and said "Hey, we got to figure something the **** out!"
I was actually more concerned about my daily migraines at the time I saw my doc but I did want to figure out my weak, tired feeling I had all the time which I thought might be related to the migraines.
After a CT scan and several different blood tests, it was finally figured out (and almost not even noticed in the blood-work) that I have type 2 diabetes.
As bad as that sounds, it was actually a huge relief to know what the **** was wrong.
The doc told me that I do not fit the category to be a diabetic because I am 27, not overweight and look very healthy. However, diabetes does run in my family and this is how come I have it now.
Without the pills or shots to control diabetes, we decided together that I should try to control my sugar levels by changing my diet and working out more consistently.
Magically bro, my daily headaches went away and the exhausting feeling was no where near as bad.
After I found out I had diabetes, I would remember back to the times I had my worst headaches and all those times I would fall asleep. Then I realized that it would all happen after I drank a mountain dew or orange juice or had ice cream or anything that was high in sugar. For me it was all related to sugar.
If my doctor didn't suspect on her own feeling that I could possibly have a sugar problem, even though absolutely NONE of my previous blood tests ever indicated it, then she would have never ordered whats called a "Glucose Tolerance Test" and I would still be in misery.
It's now been 7 months since I was diagnosed with diabetes and I have stuck with my low sugar diet and workout routine. I recently had some blood-work done to see how everything was looking and the doc told me, (and I looked for myself) that my blood-work in now better than it has ever been and, "Whatever you're doing, keep doing it. You are more healthy than most people without diabetes."
btw I did a newb cycle of dbol followed by 5 weeks of Test E shortly after I was diagnosed. I originally ordered this gear because I was going to try steroids as you did to fix whatever was wrong.
It turned out to be diabetes but I decided to use the gear anyways with no problems other than the gear did make me pretty tired in itself and did the opposite of what I thought it would do.
Good luck with your situation and don't stop looking for answers till you find one!
http://www.diabetes.org/home.jsp
check this site out if interested.Last edited by Lavinco; 04-29-2006 at 07:24 AM.
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04-29-2006, 09:00 AM #7Originally Posted by lean1
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Originally Posted by lean1
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04-29-2006, 11:47 AM #9Originally Posted by mercedesdd
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Originally Posted by AIZ
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Originally Posted by mercedesdd
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04-29-2006, 02:13 PM #12Originally Posted by mercedesdd
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Originally Posted by Lavinco
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04-29-2006, 03:39 PM #14
Sorry to hear about your situation. I had a tough time in the early 90's with fatigue and I was told that I had CFS. Last I heard it was associated with Epstien-Barr Virus. Upon hearing that I had this I was relieved at first because I thought I was dieing - that maybe I had a brain tumor or some degenerative disease to my nervous system. I became forgetful and my concentration was for crap. My ability to process information slowed down noticeably and it was strange. I read everything I could about it and found it was controversial - that many doctors didn't believed it existed in the sense that it was more of a syndrome than something that can be isolated in a dish like HIV. I read that ninety percent of the population would test positive for Epstein-Barr virus yet most people don't show symptoms of CFS so many health care professionals called it "yuppie hysteria" I guess alot of upper middle class types got it - maybe related to the pressures of their lifestyle. I haven't read much about it since. Maybe it's better understood today. In hindsight, I wonder if I was just depressed. I think I was always prone to seasonal depression - just a kind of low grade feeling of "blue".....but I'll never forget that fatigue and that slowed down feeling. Maybe you can get someone who specializes in this type of disease? Do as much research on it as possible. Good luck!
Originally Posted by lean1
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04-29-2006, 04:53 PM #15Banned
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theres always crank!!!!!! j/k
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04-29-2006, 05:34 PM #16Junior Member
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thanks for all the replies I learned I guess it comes in different forms and I'm so glad I'm not alone bottom line life goes on but when you get this way it can be depressing itself ......... will try vitamins
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04-29-2006, 05:57 PM #17
I was just going to post the same question,but I often feel a fever and have to force myself to eat.I take all my vitamins and drink a lot of water.I used to take vit.B-12.Think Ill try that again.Im also taking a high test cycle.For me anyway.About 1155mg/week.So maybe itll end up going away only 10 days into my cycle...
Last edited by Triton; 04-29-2006 at 06:04 PM.
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05-17-2007, 09:24 PM #18Junior Member
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Solutions
I was bedridden for 9 months out of the past 18. I found a 50% improvement by taking a supplement regimine
Acetyl L Carnitine
MSM
NADH
5-HTP
B1
B2
B5
B6
B12
Niacin
B complex
Multivitamin
SAMe
Co Enzyme Q10
Fruit Juices Vegetable Juices
CLean living, no alcohol,
Prescription meds include Bupropion SR 150 mg (helped a lot), Ritalin 200 mg, I take a thyroid pill since I am hypothyroid - levothyroxine,
For sleep I take a sleeping pill since in CFS patients they have trouble getting or staying assleep or getting deep rem sleep. I take pill to make sure I rest.
next will be HGH and HCG as well.
CFC is a multi systems disease, a good book to get on the internet is located at web address www.drmyhill.co.uk/cfs_book.pdf it's a pdf. next you can look at Dr. Holtorf website
I am going to Dr. HOltorf in June his web address is www.hormoneandlongevitycenter.com
ANother incredible site is www.immunesupport.com
This is a terrific amount of information. I live in Hawaii where the number one specialist in the world lives but he charge $5800 adn $660 an hour. I followed is treatment protocols and got better.
His treatment protocol is here http://www.immunesupport.com/chronic...teitelbaum.htm
REad from fatigued to fantastic by Jacob Teitelbaum (the expensive doc) THis is his book.
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05-17-2007, 09:39 PM #19Originally Posted by Jawncy
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05-17-2007, 09:41 PM #20
I just posted this the other day..
Fatigue and Diet
I am experimenting with Strattera right now. Going to participate in a sleep study to in order to rule out sleep apnia.
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05-17-2007, 10:03 PM #21Originally Posted by renman8
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05-17-2007, 10:13 PM #22Junior Member
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One more thing
I just saw one more thing this past week I"m going to try called D-Ribose. REcent studies have shown a significant improvement in just one month with the brand name CorvalenM.
News of study located at:
http://www.medicalnewstoday.com/medi...p?newsid=37399
Medicine and Science do know that people with CFS and Fibromyalgia have lower levels of the energy molecule called adenosine triphosphate (ATP) and a reduced capacity to make ATP in their muscles. It is know from previous studies ribose can fuel ATP synthesis and the latest piece of science shows ribose supplementation can reduce muscle pain and enhance quality of life for those suffering with fibromyalgia and/or chronic fatigue.
Dr. Teitelbaum says that the study they did verified what they already knew about the impact of ribose on energy recovery in muscles generally, But specifically they determined the energy building benefit of ribose directly improved the debilitating symptoms of these conditions. I think this study, and follow on studies now in development, will make ribose one of the most important new nutrients studies in the next few years for CFS and FM patients.
"Despite the fact chronic pain syndrome with fibromyalgia-like symptoms have been described in medical literature for over 200 years, we still don't know the exact cause," states Clarence Johnson, CEO of Bioenergy and Valen Labs.
Product located at: http://www.corvalen.com/shopping.php
I have not tried it yet but am going to. THis assists in the intracellular mitochondrial communication similar to how insulin assists with bringing the sugar into the cells while taking testosterone and HGH.Last edited by Jawncy; 05-18-2007 at 01:12 PM.
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05-17-2007, 10:16 PM #23Junior Member
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Ritalin
Sorry, 20 mg a day to 30 mg a day time released Ritalin SR.
My mistake.
Jon
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05-17-2007, 10:22 PM #24Junior Member
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Cfs
As I said CFS is a MULTI SYSTEMIC problem I have problems with all of these things.
Liver function
Testosterone levels
DHEAS levels
Thyroid levels
IGG and IGF levels
Cortisol Levels
This alone is signficant of a serious problem with the hypothalmus, adrenal, pituitary axis. HPA axis.
I got very ill at first for 6 weeks with a viral infection and it went downhill from there.
I have significant levels of cyt*****lovirus in my blood, well beyond what a normal person should have which shows my bodies inability to heal.
CFS studies have shown that this is a problem with the cells at a cellular mitochondrial level and that the underlying systems must be fixed.
CFS specialists take a 6-7 fold treatment approach to treat all of these problems at the same time.
It is not easy to diagnose and I think your physician is discountiing real studies that have shown that this is a real problem and a real disease. He has to spend 40 hours studying it on the dinternet before he'll really understand what I am saying.
It isn't smoke up on'es *ss or a cop out. I used to make $135,000 a year and have 7 employees, now I have one employee and make $15,000 a year. Lost everything except my penthouse which I own outright due to prudent planning. THankfully I am able to live - some are not so fortunate.
My trainer was helping me at first at the gym but my Doctor told me to stop since it was having such a detrimental effect on my overall status and health. I would be in bed for a whole day after a workout then the next workout would start and I"d never recover. I stopped but have gotten better. Hopefully HRT will do the rest.
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05-17-2007, 10:32 PM #25
dude low test, thyroid etc can cause chronic fatigue. gotta remember, hypothyroidism is the main cause of CFS. BTW, start armour thyroid. pure T4 sucks as a treatment!
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05-17-2007, 10:47 PM #26Originally Posted by Jawncy
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05-17-2007, 11:06 PM #27Junior Member
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Protocols
The Dr. who recommends this is Teitelbaum - he is the worlds number one specialist charges $5,800 first visit and $660 a visit after that every quarter plus supplements.
I can vouch for this. I've seen a compounding pharmacists and a PHD in Pharmacy to get more detailed assistance.
Remember I was desperate an dwilling to try anything after losing my biusiness and six figure income. Dr. Holtorf is in Santa Monica and is another CFS specialist.
The Teitlelmaum list is what he has published, it is a try it for a few weeks see if it works, keepit then if it doesn't then leave it and onto the next.
REad from Fatigued to Fantastic by Jacob Teitelbaum - you can get it for $5.00 on amazon used.
He also wrote a book called "pain free 123".
His protocols got me out of bed and on my feet again working a little bit each day. I swear by supplementation for CFS improvement.
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05-17-2007, 11:08 PM #28Junior Member
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T4 vs T3
I agree I wanted my physician to test for free t3 rather then tsh or free t4 and they just won't do it. I am seeing an endocrinologist soon and will ask again.
I asked about Armour and the doctor told me that there is not difference. I read there is, doc says there isn't. How am I to know unless I'm a biologis and a chemist which I'm not.
I want what works so I am going to see that Dr. Kent Holtorf in June in Santa Monica for a consult to make sure I get what I need.
He has a 85% success rate I think with CFS recovery through the use of HRT.
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05-18-2007, 12:58 AM #29Originally Posted by Jawncy
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05-18-2007, 11:31 AM #30Banned
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I know it's not the same thing but when I started my cycle I was always fatigued and tired. I didn't want to work out and always wanted to nap. I just added in my Clen and I am great all day now...
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05-18-2007, 01:04 PM #31Junior Member
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Chronic Fatigue SPecialist Protocols
I am posting this to give everyone a good overview of the tremendous complexity of CFS and Fibromyalgia. Blood Tests are the ONLY litmus test and these are very specific and often times expensive. My Medical Insurance pays everything except a $15 office visit $10 prescriptions and only 10% copay on labs so I am lucky. I also have HGH, HCG and all other stuff covered in the same manner. THe insurance is $385 a month but it is cheap compared to what I've been going through.
This paper was written by Kent Holtorf in Torrance CA. His website is http://www.hormoneandlongevitycenter.com. It outlines what I've been saying about this being a multisystemic problem. It explains what a specialist does in order to get all systems under control, in fact I would say that if someone is on steroids that it could mess up ones body LIKE chronic Fatigue used in the large doses you guys seem to ingest, inject . . .
Yes, it is a problem which is a physician problem - but not in the way that one member says it is (copout), a doctor who isnt' good enough to diagnose all of these problems just can't treat CFS PERIOD. They aren't good enough and they don't have the experience with endocrinology, internal medicine, and several other specialties combined. Here it is.
New Standard for the Treatment of CFS and Fibromyalgia
Chronic Fatigue Syndrome and Fibromyalgia are complex diseases that involve multisystem disturbances and abnormalities. Because of this complexity, these conditions have been poorly treated by the current medical system in this country.
These conditions do not lend themselves to be successfully treated with the eight to fifteen minute visits that address only a portion of the wide spectrum of underlying dysfunctions. Through a more detailed evaluation, all identifiable etiologies' contributing to the symptomology may be appropriately addressed, and when multifaceted treatment is instituted that addresses the entire spectrum of these diseases, truly remarkable success and total cures can be obtained.
In general, successful treatment can be viewed in components. Treatment needs to be individuahzed, components may occur in different order and multiple components are often addressed simultaneously, but these can be broken down as follows.
Component One: Stabilize the Patient
This is a component in which pain and sleep disturbances are addressed. This may include the use of sleep medications, pain medications and anti***ressants. This is in general a temporary "stop gap" phase because as the treatment progresses and the underlying problems are addressed, the medications that "mask the symptoms" are no longer needed. Unfortunately, the overwhelming majority of patients are never brought past this stage by their doctors. This is because this component is the limit of training for most doctors, but it really should only be the first step.
Component Two: Mitochondrial Enhancement
This component is actually integrated throughout the treatment program and tapered as the patient returns to normal functioning. The mitochondria are the energy producers of the cells and are critical for normal functioning. But they are shown.to be poisoned in these conditions, leaving the cells starving for energy.
Many things can poison the mitochondria including hormonal deficiencies, toxins and infections. Mitochondria dysfunction may be the common denominator and underlying mechanism that explains the symptoms of CFIDS/FM. In addition to the treatments above to rid the body of the offending agents, specific nutrients can be given to jump start the mitochondria and get the body functioning again. These can also be administered orally or via an intravenous route.
Component Three: Balance the Hormones
There are a number of hormonal deficiencies with these conditions that must be addressed to assure successful treatment. Unfortunately, these hormonal deficiencies are often missed or poorly treated because doctors have come to rely on standard blood tests that require an intact pituitary and hypothalamus for diagnosis and dosing of hormone levels. There is, however, severe hypothalamic and pituitary dysfunction with these conditions, making the standard blood tests inadequate. Some typical hormone functions, not just levels, that need to be evaluated include thyroid function, growth hormone , testosterone , aldosterone, cortisol, DHEA, pregmenolone, estradiol, progesterone, among others. When they are properly treated and balanced, tremendous results can be achieved.
Component Four: Treat the lnfectious Components
There are multiple infections that either may be the cause of CFIDS/FM or contribute to the dysfunction. Because of the immune dysfunctions, there is often more than one infection that must be addressed. Potential pathogens include a variety of viruses such as Epstein Barr (EBV), Cyt*****lovirus( CMV), Human Herpes Virus 6 (HHV6), Enteroviruses, such as Coxsackie, Echo, and ******* virus. Bacterial infections include intracellular organisms such as Mycoplasma, Chlamydia pneumonia, Borrelia Burgdorferi (Lyme disease) and Ehrlichia. A number of yeasts such as Candida and parasites must also be evaluated. Infections with many of the above organisms will also further suppress the immunity, often resulting in further infections with other organisms.
Thus, many organisms must be evaluated and treated along with an assessment and treatment of the immune system. If a poor immune system is not addressed, successful eradication of the organisms is not likely, even with the most potent treatments. Treatment may be administered with oral medications or via an intravenous route. A combination of IV and oral medication in conjunction with immune modulation is extremely powerful.
Component Five: Address Unique Etiologies
There are a number of problems that must be addressed in select patients. For instance, some individuals have a coagulation defect that is set off by a chronic infection. This results in the laying down of a fibrin coating on the lumen of the vessel causing impaired oxygen and nutrient transfer. This can result in fatigue, muscle aches and "brain fog". If suspected, diagnosis requires specialized testing. If not treated, not only are the cells starved for oxygen and nutrients, but it is very difficult to eradicate any infection because they will "hide" in the fibrin coating. Also, if the organism is one that produces neurotoxins, this must also be addressed. These substances can remain in the body and continue to cause symptoms long after the organism that produced them are gone. Special testing and protocols must be done to rid the body of these tiny toxins.
Component Six: Maintenance
Here is where the patient is weaned to just a few core medications and supplements to remain symptom free and maintain their health. Significant recovery or complete resolution of symptoms is the rule rather than the exception when a multifaceted treatment plan is instituted.
Multi-faceted Treatment Approach is Best
Chronic Fatigue syndrome (CFS) and Fibromyalgia (FM) are illnesses that often coexists and affect millions of Americans. Symptoms vary amongst individuals and commonly include severe fatigue, sleep disturbances, cognitive problems, commonly called brain fog, muscle pain and multiple infections. Unfortunately, many individuals and physicians continue to deny that these syndromes are legitimate diseases. The medical literature is, however, very clear that these are legitimate diseases and individuals with these syndromes have measurable hypothalamic, pituitary, immune and coagulation dysfunction.
These abnormalities then result in a cascade of further abnormalities, in which stress plays a role. The pituitary and hypothalamic dysfunction results in multiple hormonal deficiencies that are often not detected with standard blood tests, and autonomic dysfunction, including neutrally mediated hypotension. The immune dysfunction, which includes natural killer cell dysfunction, results in opportunistic infections and yeast overgrowth, making the symptoms worse.
Recent studies have shown that the coagulation dysfunction is usually initiated by a viral infection and has genetic predisposition. This abnormal coagulation results in increased blood viscosity (slugging) and a ***osition of soluble fibrin monomers along the capillary wall. This results in tissue and cellular hypoxia, resulting in fatigue, and decreased cognition (brain fog).
Neurotransmitter abnormalities and macro and micro nutrient deficiencies have also been shown to occur with these disorders.
Gulf War Syndrome, which is almost identical to CFS and FM, was found to have a parallel cause. The cause was determined to be from multiple vaccinations under stressful conditions in susceptible individuals. These vaccines, which are viral mimics, resulted in the same coagulation cascade and the ***osition of fibrin monomers, resulting in the same tissue hypoxia that occurs in FM and CFS. These multiple injections are being discontinued by the armed forces.
Current research suggests that many triggers can initiate a cascade of events, causing the hypothalamic, pituitary, immune and coagulation dysfunction. The most common initiating cause is a viral or bacterial infection, which is very commonly Epstein Bar Virus (EBV), Cyt*****lovirus (CMV), HHV6, mycoplasma, Chlamydia pneumonia or Lyme’s disease. These are found in 80% of CFS and FM patients. Many people with these syndromes can pinpoint the start of their disease to a viral infection that never got better. Also, stress seems to be a contributing factor.
Effective treatment, with 80 to 90 percent of individuals achieving significant clinical benefits, can be achieved by simultaneously treating the above problems that an individual is found to have. The mix of treatments needed varies from patient to patient. There are some abnormalities that are common. For instance, close to 100% of individuals with these syndromes have low thyroid. This is, however, usually not picked up on the standard blood tests because the TSH is not elevated in these individuals because of the pituitary dysfunction. Many of these individuals will also have high levels of the anti-thyroid reverse T3, which is usually not measured on standard blood tests. In addition, the majority of individuals can also have a thyroid receptor resistance that is not detected on the blood tests. Consequently, thyroid treatment, especially with timed release T3 is effective for many patients. T4 preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions. Adrenal insufficiency and growth hormone deficiency are also very common with these disorders, and supplementation with these hormones can often have profound effects. As with thyroid testing, these deficiencies are, unfortunately, usually not detected with the standard screen blood tests and require more specific testing. When an individual is found to have one of the viruses discussed above, these can be treated with resulting improvement in symptoms. It can require a combination of medications, supplements and sometimes intravenous treatments to eradicate some of the persistent infections.
Although a concept that is sometimes uncomfortable and foreign to traditional medical styles of thinking, the need for multiple interventions is effective when an illness affects a critical control center (such as the hypothalamus), which impacts the multiple systems noted above. Unfortunately, there is not a single treatment that reverses hypothalamic dysfunction directly. Thus, this situation is different from illnesses that affect a single target organ and which can be treated with a single intervention. For example, pituitary dysfunction itself often requires treatment with several hormones. This effect is multiplied in hypothalamic dysfunction, which affects several critical systems in addition to the pituitary gland. An integrated treatment approach based on simultaneously treating the above problems is significantly beneficial in CFS and FMS. Individuals with these devastating syndromes can “get their lives back” despite the fact that they were previously told, “There is nothing that can be done,” or “It is all in your head.”Last edited by Jawncy; 05-18-2007 at 01:51 PM.
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05-18-2007, 02:57 PM #32
great read^^^^^ I was having SEVERE fatigue and poor cognitive function. Finally after a couple of years I went to the doctor for it. He said i had "the worst case of hypothyroidism he has ever seen". Im now on 200 mcgs ED of T4 (levothyroxine) and it made a world of difference!!!! It was amazing how immediate the transformation was. Im lethargic right now, but Im pretty sure that its from high test doses. Good luck bro, I know your pain.
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06-10-2009, 12:18 PM #33New Member
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I'd definitely give the d-ribose a try. I've heard many who suffer from Fibomyalgia say that it helps them immensely. It is necessary for production of ATP, which the heart and muscles both need. It really should help with energy levels since it supports cardiac energy levels. I would definitely look into d-ribose and give it a try. It's definitely worth it.
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02-03-2013, 04:41 AM #34New Member
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I'm glad I found this thread. I've had chronic fatigue symptoms for 2 years, it all started with me being sick for about 2 weeks. I felt like I never recovered from it , although the "sick" symptoms eventually went away, the fatigue, tiredness, and brain fog stayed. I was on a cycle of Test and Masteron at the time and every time I took a shot (especially Masteron), the symptoms instantly got worse. After a while I started doing blood tests through internet websites (I had no health insurance), I found presence of HHV-6 virus, borderline low thyroid, slightly high AST (liver) , low SHBG , low DHEAS-S. When symptoms were at their worst I had pain in my abdomen (organ, probably spleen) , swollen and painful lymph nodes, super dry hands , hair falling out , no sex drive and just feeling like **** all the time. After treating with supplements and just kind of taking it easy for the past couple of years (hoping it would all go away with time) , things have improved alot compared to what they were but I'm still suffering from exercise intolerance , low testosterone (~300 ng/dl, never had this problem before) , poor muscle definition , poor vascularity , and general fatigue. Luckily I'm not bedridden and I can still function but not at the level that I should be able to. I went to Kaiser and they said nothing in my blood work was abnormal enough to determine a cause or treatment, and that I looked like a healthy person. They said I should go see a psychiatrist and be evaluated for depression, haha. I'm about to go see an independant doctor which will hopefully prescribe me Test and Armour thyroid. This seems like the most likely 2 substances that will help.
I'm going to look into the D-ribose, too.
I'd be interested to hear from other people that have had similar problems , especially people that have recovered or improved.
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