I had blood tests in january which showed up very high haemaglobin, hematocrit i was referred to a haematologist who told me i was at risk of stroke . She prescribed me asprin and i had weekly venesections (blood draws) to bring the levels down .She said i had probable testosterone related polycythemia but did not rule out primary polycythemia to be on the safe side she did further blood tests including JAK2 gene test, EPO,bone profile, LFT ,FBC vit b12 etc.
She wanted me to discontinue the trt to establish if ir was the cause of the high hematocrit and to bring levels back into range , then the next step is to refer me to an endo and put me back on trt with a different application method/ dosage and regular blood tests monitoring and if need be blood draws to keep my hematocrit levels under 0.480 (0.40-0.50)
I had to go in to hospital every week for the last 3 months for weekly blood tests and i have given a pint of blood each time, it has has taken 8 weekly blood draws to get my blood levels down from a hematocrit of 0.605 (0.40-0.50) ,they are well within range now, but i am having weekly blood tests to monitor levels and keep hematocrit under 0.480 (0.40-0.50)
I go to see my haematologist this monday to discuss all my test results and the next step she has made me an appointment with endo who is going to work with my haematologist .
I was actually thinking of trying a re-start to see if i can get testosterone woking naturally as this high hematocrit freaked me out but i will see what the specialists say .
Last edited by vinny t; 05-10-2014 at 11:00 AM.
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