Thanks for the link! I'm kind of in the middle with this one. When my hematologist ran genetic testing and discovered the Leiden Factor V, he also did TSAT, ferritin levels, and of course the CBC components, and a couple of others that I don't recall (I'll have to dig through my copies and see).
Anyway, since TSAT came back good, hemochromatosis was ruled out, EPO was in range, and the marrow aspiration ruled out out PV, and they were at a loss as to why ferritin and hemoglobin stayed elevated unless it was something called Dysmetabolic Iron Overload Syndrome, which he and his colleagues didn't think was the case.
They suggested I minimize my iron intake somewhat ( I used to live almost exclusively on steak and spinach). Also, since the clotting disorder was in play, he had me minimize Vitamin K since I have the clotting disorder, and the only anticoagulant that affected my PT/INR was Arixtra, which they didn't want me on long term.
I refused to have an ICV after the debacle with the pacemaker, which of course, frustrated them, but anyway.

I currently seem to manage my blood best by slightly cutting back on iron within reason, donate frequently since none of my conditions are on the deferral list, and minimize Vitamin K.
LOL, they actually had quite a time.with me. They were in constant communication with the cardiologist from MUSC that my regular cardiologist had consulted with.
Of course, my hematologist isn't a fan by of my replacement T, but that was a decision the wife and I made.
Defo appreciate the link as I'm always reading and trying to run across people that have had similar issues. Sorry for the long winded response, but I wanted to give you an explanation since you provided the link. Much appreciated!
