Third wake up call !

[transilvania]

Similar experience here. Viral myocarditis caused by Coxsackie B virus. It really wrecked my heart...ejection fraction down into the 12-15% range. Fired cardiologist, got in with a more modern cardiologist that was connected to Medical University of SC. Was seeing my cardiologist and a professor/specialist from M-USC. Had biventricular pacemaker implanted to help with arrhythmia and to improve function and better cardiac medication.

Left arm became very swollen biceps was literally 2"/51mm larger than the right. Cardiologist immediately had me in for ultrasound and clots were identified. Started on anticoagulant therapy, apparently my body is resistant to Coumadin. PT/INR could never be accurately checked, it clotted before the sample could be checked. Sent to an oncologist because they specialize in all types of blood disorders. Found out I have a genetic clotting disorder called Leiden Factor V. Started on short term Arixtra therapy due to risks with long term heparin usage.

Got multiple strains of staph in my blood, but didn't know it. Just knew I was running weird fevers and was very weak. Went to cardiologist, they hooked me up and discovered I had coughed loose a pacemaker lead. Sent for lead revision and at admission to hospital they said I was running fever of 103.8°F. Was in and out of it/in very bad shape...fever hit 104.3°F, wasn't really expected to recover Had pacemaker removed to clear staph from my body.

Wore IV pump for 12 weeks with 2 lines going into artery my arm and running over to my heart. They wanted to implant a Greenfield filter/ IVC device to catch blood clots but I refused. I didn't want anything artificial in my body again after the staph problems. (ended up with a bunch of hardware in my neck, but anyway....).

Eventually worked back up my heart to 40% through stubbornness and cardio, plus the better meds the specialist from USC and my cardiologist put me on.

Started TRT through my PCP about 6-8 years ago. Have had no issues yet. Currently on .33cc of test cyp twice per week.

So, get your clotting problem straightened out. If it's a genetic issue, keep your Hct and platelet levels in range. Stay well hydrated.

Don't give up hope. There's absolutely nothing unhealthy about maintaining a healthy testosterone level , in my opinion and my experience.

At my last cardiologist appointment, my active cardiac problems are:

Left bundle branch block
Cardiomyopathy
Congestive heart failure
Mitral valve disorder
Atrial fibrillation
Coagulopathy
Left ventricular hypertrophy

PM if you have questions. Don't know if I'll have an answer, but if I can help, I will.

Edit: I may have left out some details, but I hit all of the major points.

Thanks bro ! They test me for Coxsackie b on myocarditis but was negative so they didint figure out from what i got it ,my ejection fraction got up quick and in a week or two i was back on training ,but after my MI they discover a mild mitral insufficiency grade 2 most likely acquired after the heart attack but no other problems and in one month i was alowed to train again . After this last scare i stop my cycle cold turkey and for one month i did some hcg and after i start 25 mg subq test MwF for the next month but my sex drive was off so i bump to 25 mg ed from monday-Friday with a total 125 mg week ,last monday i got my blood work to know were im at 12 weeks after blood clot and surprise my hct hgb and rbc are elevated other markers are all in range

[almostgone]

Thanks bro ! They test me for Coxsackie b on myocarditis but was negative so they didint figure out from what i got it ,my ejection fraction got up quick and in a week or two i was back on training ,but after my MI they discover a mild mitral insufficiency grade 2 most likely acquired after the heart attack but no other problems and in one month i was alowed to train again . After this last scare i stop my cycle cold turkey and for one month i did some hcg and after i start 25 mg subq test MwF for the next month but my sex drive was off so i bump to 25 mg ed from monday-Friday with a total 125 mg week ,last monday i got my blood work to know were im at 12 weeks after blood clot and surprise my hct hgb and rbc are elevated other markers are all in range

My Hct and Hgb have always been upper end of the range/elevated. I think it's related to the clotting disorder since it's been a lifelong thing.

I donate/do what is needed to keep it in range and it keeps my Dr. happy enough so that she won't mess around with my testosterone dosage.

Have they identified which clotting disorder you have?

[transilvania]

My Hct and Hgb have always been upper end of the range/elevated. I think it's related to the clotting disorder since it's been a lifelong thing.

I donate/do what is needed to keep it in range and it keeps my Dr. happy enough so that she won't mess around with my testosterone dosage.

Have they identified which clotting disorder you have?

Righ now im still on xarelto for the next 2 weeks and after i finish ,i have to wait 2 more weeks to get out of my sistem and got blood work for 5 blood clooting dissorder so i cant donate blood ,i was on baby aspirin and 2000fu Nattokinase 3 months ago when i got this blood clot with normal rbc hct INR and still got it

[transilvania]

This is from ER first time after they send me home

[almostgone]

Righ now im still on xarelto for the next 2 weeks and after i finish ,i have to wait 2 more weeks to get out of my sistem and got blood work for 5 blood clooting dissorder so i cant donate blood ,i was on baby aspirin and 2000fu Nattokinase 3 months ago when i got this blood clot with normal rbc hct INR and still got it

When you go for the blood draw for your clotting disorder diagnosis, they may draw quite a few samples. Don't let it worry you, that is normal.

[transilvania]

When you go for the blood draw for your clotting disorder diagnosis, they may draw quite a few samples. Don't let it worry you, that is normal.

Hematology doctor told me to get peripheral blood smear ,factor v leiding ,protein c ,protein s,antitrombin lll and factor ll

[almostgone]

Hematology doctor told me to get peripheral blood smear ,factor v leiding ,protein c ,protein s,antitrombin lll and factor ll

Hopefully, they're sending an order for the draw. Please share the results when you get them.

[transilvania]

Hopefully, they're sending an order for the draw. Please share the results when you get them.

Of course ! How your plattelets numbers was at the time you got your blood clot , same as you my rbc hct is always at the high end even if i look at some blood work from 20 years ago but what i found is that when i had the heart attack my rbc hct hgb was in range but my plt numbers was at the high end 402 range 150-450 and now with this blood clot same rbc hgb hct in range and plt 309 first time and 376 after one week when i return back to ER with my hand and ussualy my plt sit around 230-240 i dont know if have something to do ,and my Aptt is lower than minim normal