
Originally Posted by
Twist
Wow this is A LOT worse than I thought. CFS has not only no known cure but no known cause at the same time. If doctors can't figure this out there is no way I will be able to. Let's start at the beginning.
How did you gain weight to the weight you are at? I gained the weight as a meter reader i walked alot got alot of leg muscels and ate alot of food at nite cause no time to eat during the day..but after meter reading was hard to break the cycle and the testo put some weight on me..
When did you first get symptoms and what weight were you at then? i have had the symptoms since 22.. i dont remember what weight, ..but also had hep c (went on interferon 13 years ago.. never recovered my enregy but hep c went into remission)
What medications or supplements/stimulants do you take?t3 thyroid, dhea/preg sleep meds (which i am trying to kick but laying awake the the nite not feeling well isn't fun.. t-gel about 25mg a day.. antivirial -prescribed by standford as an experiment..and antibiotics when needed.
What is your family history like(genetics and medical)? slow moving family not much into exercise.. eats alot of fast food and canned veggies.. they are 2000 miles away in the midwest, haven't seen em in years as i can't travel much.
Does weight training make you go into this state or is it cardio related? If we kept your heart rate low but worked muscles would that trigger an episode? I am not sure.. the chinese herbalist said try not to "sweat " too much...as my body can't restore.. so i am not sure.. as i have been trying to do weights and cardio of some sort for years.. well i know when i tried the spin class i ended up really really sick.. so i would say cardio ..is the worse? but most important is not to wear the bod down..
How do you workout at all? the gym and my body are the only thing i have left.. i love going to the gym..golds.. it is a great inspiration-- i push myself, usually with caffinee- but we have to have something in life right?
Are you sure you don't have lupus or another similar disease? Cfids seems like a diagnosis when doctors don't know what is going on. been to so many docs.. the lupus came out neg.. i know what you mean about hte docs they dont know what ya got so they stick ya in a catagory.. and 102 fevers are not typical for cfids-- but maybe that is becasue i push myself so hard?-- till i get sick and cant push.. so the key is baby steps..
I would like to cut out all animal proteins from the diet. I think a detox diet is in order. I need to contact my friend and ask her what the best detox would be and for what duration of time. Most likely it would look something like what I posted above followed by another strict diet.
i tired a detox a few years ago and i actually got alot sicker-- and animal protein , chicken is my stable.. i woudn't know what to do without it.. there is a "theroy about folks with cfids.. " that our bodies dont make enough glutathione... which is how we "detox" so if you put us into detox we actually get sicker casue the body can't clear the toxins.. so it has to be very gradul.. like taking nac or glutathione suppliments... who knows.. i am going to keep working with the chinese herbalist and the massage lady- who is trying a gentle detox with cupping..
Are all of your tests done by Stanford? I have been there many times and they are great doctors. They work in a team there. But does your CFIDS doctor know how to control hormones as well as a endocrinologist would?